It's a cold, rainy day in upstate NY. I was sitting at my computer, reading my daily blogs, when I came across a link to a website called "But You Don't Look Sick". On this website is an article, written by Christine Miserandino entitled "The Spoon Theory". Christine has Lupus. Even though I do not, I could really identify with her story.
As I go through my daily struggles with nerve pain, I have wondered many times what will happen if I don't get any better. Will I have to live with the pain, numbness, weakness and lack of energy for the rest of my life? Will it get worse? How will other people treat me? Will they understand what I'm going through? Will I lose friends or family who are just too tired of dealing with me?
Awful thoughts, I confess. But I do have them. Especially on days like today.
Back to the article. It pretty much describes how I have to plan my days so that I have enough energy to do the things that are "necessary". To conserve my "spoons", so that I have enough left to help my daughter with her homework and her shower that day. To rearrange my tasks so that I can spend an hour at school to help out in her class.
I think for anyone who lives with chronic pain, this story will strike a chord. For those who love someone with chronic pain, it helps explain what it is like.